My sister is developmentally disabled.
I have to remind myself of that sometimes just to keep me
grounded.
I get upset sometimes with my neighbors when they play the
music too loud. Or when I have to drive
around town because a store doesn’t have my beverage. Or I get frustrated when I don’t know what to
do on a Friday night. Or how I hate my
job.
All things that my sister would probably give just about
anything to do. I don’t like my
neighbors, I can easily find a new place to live and just move. My car and my license allow me to remove
myself from almost any situation at any moment, whether I’m thirst or not, on a
Friday night or not, and my job pays me extremely well so I can do all those
things.
My sister is just trying to live her life and experience as
much of it as possible.
Her situation is not her fault. There’s an argument to be made it’s her
parents fault (she’s adopted) but even then, there are millions of individuals
out there with setbacks that just want to be able to be a part of the
world.
They want a say on what town they live and what type of
people they live with. They understand
and accept that many of them won’t be able to live truly on their own, but that
doesn’t mean they give up getting as close as they can.
My sister wants to be respected. She wants to be heard. She’s not a child, she knows that, we know
that, but sometimes we forget, or we don’t listen or we’re just bad brothers.
She wants to be able to see what’s out there that she can be
a part of, whether it’s a new home, learn a new skill like cooking or a foreign
language, or be a part of a program during the day so she’s around like minded
people. It really isn’t that much to
ask.
So how do we create that environment?
We started with WaiverMarket.com, an online platform for
individuals with disabilities, for my sister really. The idea is that if we can get service
providers to be listed, individuals with disabilities will be able to search
them out based on need and not some alphabetical listing or pay to play
scheme.
Everyone will be listed.
Now we do have premium accounts which allow service
providers to highlight more of their services, add more pictures, and make
their profile more attractive, but the sit doesn’t sift through and block those
who have a free profile, because my sister deserves more than that.
If my sister wants to find a new place to live, she should
have a place that she can look up places that have available rooms.
But WaiverMarket.com hasn’t eliminated the Case Manager,
we’ve only enhanced what they’re able to provide. They don’t have to set up appointments, call
around to vacancies and spend most of their time doing the research, my sister
can do her research, we can help her.
This frees up the case manager to ensure that they fully understand not
only my sister’s needs, but the needs of everyone else in their case load. They will have less work because my sister is
driving her care.
We created WaiverMarket.com because sometimes we need to be
reminded that my sister deserves more.
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